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SEBASTIAN VELONA FOUNDATION IN THE NEWS

17 Mar

Posted at 20:07h in Media
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Teri Hughes Fox, Michael Fox, Sebastian Velona (13) and Gage Velona (11). Courtesy Photo  Thirteen year old Sebastian, or Sebi, Velona believes in the power of hugs.  The eighth grader at Rio Norte Junior High School believes that a big, strong hug can heal any wound, cure any sadness and brighten any room. “Anyone who knows him loves him and loves his hugs and actually feels the power in his hugs,” said...

16 Mar

Posted at 20:13h in Media
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 In October of 2007, Sebastian collapsed with his first seizure – a clonic tonic seizure mixed with partial complex seizure.  He was hospitalized and then told to see his doctor.  Ultimately, Sebastian was diagnosed with epilepsy, and he was prescribed anti-convulsant medication to control his seizures.  Until doctors found the right medicine and dosage, Sebastian’s seizures grew more severe and frequent.  He could not go more than about four days...

15 Mar

Posted at 14:47h in Media
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Courtesy of Shutterstock Carousel Ranch Celebrates 20th Year of Heart of the West Annual Fundraiser Includes Children's Demonstration Presented by the Princess Cruises Community Foundation, Carousel Ranch's annual fundraiser, Heart of the West, is gearing up to be the best yet! Held on the Western grounds of the equestrian therapy organization, HOTW will be catered by Salt Creek Grille with a bar hosted by Vincent Hill. Guests will peruse silent auction items and have a...

14 Mar

Posted at 20:14h in Media
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The Hollywood couple who started a foundation to quickly fund research to find a cure for Batten Disease, which their two daughters are living with, says they are counting on a miracle now that the girls have received a breakthrough treatment that could save their lives. Gordon Gray, the producer behind the movies “Miracle” and “Secretariat,” and his wife, Kristen, were told by doctors that their daughters,Charlotte, 5, and Gwenyth, 2,...